Millie and her partner Lewis couldn’t be more happy when they found out they were pregnant with twins. However, the doctors told them that their unborn twins suffered from a condition known as anencephaly. This condition causes under-development in specific brain parts and in most of the cases, the babies don’t make it to birth or long after.
Unfortunately, soon after the emergency C-section, the couple lost one of the two twin girls, Skye. Their pain was enormous, but they decided to focus on the surviving daughter Callie. However, what another mother told Millie in the NICU, made her cry. This is because the other woman said: “You’re so lucky you haven’t got twins…” At that point, Millie ran out of the room, crying uncontrollably. She would give anything to have both her girls.
There had to be some way to stop such accidental offense from happening to parents who lost their baby during a multiple birth. This is when Millie came up with the idea of the purple butterfly sticker.
“None of the other parents knew what happened or anything about Skye. The comment was completely innocent and more out of humor…They weren’t to know that I did at one point have two. But the comment nearly broke me. I ran out of the room in tears and they had no idea why. I didn’t have the heart to tell them what had happened. A simple sticker would have avoided that entire situation.”
The couple is now focused on raising awareness for their cause, named the Skye High Foundation. The purple butterfly stickers are now in numerous NICU units around the world thanks to their hard work.
Although this couple knows that they can’t bring Skye back, they can help other parents going through the same situation.
“Ultimately I will never be able to stop this from happening but the more support groups we can set up and put things in place like the stickers the better it will be. It’s the hardest thing anyone has to deal with.”
Millie and Lewis don’t want anyone else to experience the hardship that they were forced to face at a young age. The couple has started raising money through a website for families in similar situations.
The couple is enjoying with their daughter Callie before her health worsens, too. She is getting all the love a newborn can handle…